I'm in a no good, bad, kind of mood!!!

Norah will be here through this weekend, at least!!!  Grrrr!!!!  This has to be the most frustrating HUS visit I've had with one of the kids.  She looks good, she is more playful, but she is still sick!!  I'm so super annoyed, and I am crabby, very crabby!!!  I got zero sleep last night.  Norah's oxygen saturation kept dropping just below the alarm level (88%O2 in the blood).  It would go off, I would get up, the nurse would come in, it would come up.  That routine happened over and over all night long.  I gave up, trying to sleep, at about 7 this morning.  It was more frustrating to get all comfy & just doze off only to be woke up again.

The doctors just left the room.  Norah is even more anemic now.  There is a test they did that proves that while her heart is pumping well, it is working harder than it needs to.  Her creatinine is still the same.  It isn't getting higher which is good, but it certainly isn't better.  To be honest, I'm not okay with that anymore.  I just want my girl better and I wan to go home to the rest of my kids.   Anyway, Norah will be getting another blood test to do a type & cross & thena blood transfusion.  She does not need dialysis, which is an answered prayer, but...

I JUST WANT TO GO HOME!!!!!  I want my daughter well.